Quantitative research involving health care professionals to investigate health care for individuals with autism

  • Bettina Trixler Doctoral School of Health Sciences, Faculty of Health Sciences, University of Pécs, Pécs, Hungary
  • Henriette Pusztafalvi Department of Health Promotion and Public Health, Faculty of Health Sciences, University of Pécs, Pécs, Hungary
Keywords: autism spectrum disorder, healthcare worker, healthcare, competence

Abstract

INTRODUCTION: Healthcare for people with autism spectrum disorders can face many barriers due to their symptoms. International literature suggests that healthcare professionals have a lack of knowledge about the characteristics of the condition.

METHODS: Quantitative, online cross-sectional survey was conducted using targeted sampling between September 2020 and February 2021 (N=100). A self-designed questionnaire was used in the research. The study aimed to explore health professionals' knowledge and specific patterns of care. Descriptive statistical analysis, χ2 test, Fisher test, Pearson correlation, linear regression and ANOVA were used. Results were considered significant at the p<0.05 level.

RESULTS: The survey assessed data from 100 respondents. More than half of the health workers scored at least good on knowledge about autism. The average of their competence level was medium (3.87/7). 95.5% of the respondents had used some element of a supportive environment. A significantly higher proportion of those with 15-29 years of work experience scored at least proficient (p<0.001). Active inpatient care required significant additional time (p=0.004). The degree of difficulty of the physical examination (r=0.628) and noninvasive intervention (r=0.651) determined the greatest percentage of additional difficulty (p<0.001). A significantly higher proportion (p=0.014) of professionals (76.2%) with knowledge of information essential for the care of autistic people reported that the care of individuals with autism required significant additional time.

CONCLUSION: Although the significant results of the present study are not suitable for generalisation due to the low number of elements and sampling characteristics. Further studies are essential to establish the adapted interventions. The integration of evidence-based, autism-specific methodologies into health care is essential for effective interventions, also based on international findings.

References

Al-Farsi, Y.M., Al Shafaee, A.M., Al-Lawati, S.K., Al-Sharbati, M.M., Al-Tamimi, M.F., Al-Farsi, O.A., Al Hinai, J.A., Al-Adawi, S.S. (2017). Awareness about Autism among Primary Healthcare Providers in Oman: A Cross-Sectional Study. Global Journal of Health Science; 9(6), 65-75.

American Psychiatric Association. (2022). Diagnostic and Statistical Manual of Mental Disorders, Text Revision Dsm-5-tr. 5th Edition. Washington, DC: American Psychiatric Publishing, Inc.

Austriaco, K., Aban, I., Willig, J. & Kong, M. (2019). Contemporary trainee knowledge of autism: How prepared are our future providers? Frontiers in Pediatrics, 7. doi: https://doi.org/10.3389/fped.2019.0016

Bognár V., Bíró A. & Marossy-Dévai Z. (2009). Az autizmussal diagnosztizált népesség az egészségügyi és a közoktatási rendszerben. In Petri G. & Vályi R. (szerk.), Autizmus – Tény – Képek. (pp. 11-18). Autisták Országos Szövetsége- Jelenkorkutató Alapítvány.

Bölte, S. (2014). Is autism curable? Developmental Medicine & Child Neurology, 56(10), 927–931. doi:10.1111/dmcn.12495

Corsano, P., Cinotti, M. & Guidotti, L. (2019). Paediatric nurses’ knowledge and experience of autism spectrum disorders: An Italian survey. Journal of Child Health Care, 24(3), 486–495. doi:10.1177/1367493519875339

Csepregi A. & Stefanik K. (2012). Autizmus spektrum zavarral élő gyermekek, tanulók komplex vizsgálatának diagnosztikus protokollja. (pp. 7-8.) Budapest: Educatio Társadalmi Szolgáltató Nonprofit Kft.

Du, R. Y., Yiu, C. K. Y., & King, N. M. (2018). Oral Health Behaviours of Preschool Children with Autism Spectrum Disorders and Their Barriers to Dental Care. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-018-3708-5

Egészségügyi Minisztérium. (2008). Az Egészségügyi Minisztérium szakmai irányelve az autizmusról/autizmus spektrum zavarairól. Egészségügyi Közlöny 58(10), 2930-2967. http://www.kozlonyok.hu/kozlonyok/Kozlonyok/6/PDF/2008/10.pdf

Fein, D. (ed.). (2011). The neuropsychology of autism. Oxford University Press.

Imran, N., Chaudry, M. R., Azeem, M. W., Bhatti, M. R., Choudhary, Z. I., & Cheema, M. A. (2011). A survey of Autism knowledge and attitudes among the healthcare professionals in Lahore, Pakistan. BMC Pediatrics, 11(1), 107-112. doi:10.1186/1471-2431-11-107

Janoch M. (2012). Problémás viselkedések megelőzése és kezelése autizmus spektrum zavarokban. (pp. 25-90). Budapest: Autizmus Alapítvány Kapocs Könyvkiadó.

Li, H.-J., Chen, C.-Y., Tsai, C.-H., Kuo, C.-C., Chen, K.-H., Chen, K.-H., & Li, Y.-C. (2019). Utilization and medical costs of outpatient rehabilitation among children with autism spectrum conditions in Taiwan. BMC Health Ser-vices Research, 19(1) 354-362.

Lord, C., Brugha, T. S., Charman, T., Cusack, J., Dumas, G., Frazier, T., Jones, E. J. H., Jones, R. M., Pickles, A., State, M. W., Taylor, J. L. & Veenstra-VanderWeele, J. (2020). Autism spectrum disorder. Nature Reviews Disease Primers, 6(1). doi:10.1038/s41572-019-0138-4

Lunsky, Y., Lai, M-C., Balogh, R., Chung, H., Durbin, A., Jachyra, P., Tint, A., Weiss, J. & Lin, E. (2022). Premature mortality in a population-based cohort of autistic adults in Canada. Autism Research 15(6). doi:https://doi.org/10.1002/aur.2741

Lyall, K., Croen, L., Daniels, J., Fallin, M. D., Ladd-Acosta, C., Lee, B. K., Park, B. J., Snyder, N. W., Schendel, D., Volk, H., Windham, G. C. & Newschaffer, C. (2017). The Changing Epidemiology of Autism Spectrum Disorders. Annual Review of Public Health, 38(1), 81–102. doi:10.1146/annurev-publhealth-031816-044318

Martinez-Murcia F. J., Lai M.-C., Górriz J. M., Ramírez, J., Young, A. M. H., Deoni, S. C. L., Ecker, C., Lombardo, M. V., MRC AIMS Consortium, Baron-Cohen, S., Murphy, D. G. M., Bullmore, E. T. & Suckling, J. (2016). On the brain structure heterogeneity of autism: Parsing out acquisition site effects with significance-weighted principal component analysis. Human Brain Mapping 38(3), 1208–1223. doi:10.1002/hbm.23449

Mason, D., Taylor, H., Ingham, B., Finch, T., Wilson, C., Scarlett, C, Urbanowitz, A., Nicolaidis, C., Lennox, N., - Moss, S., Buckley, C., Cooper, S-A., Osborne, M., Gardalnd, D., Raymaker, D. & Parr, J. R. Views about primary care health checks for autistic adults: UK survey findings. BJGP Open 20;6(4):BJGPO.2022.0067. doi: 10.3399/BJGPO.2022.0067.

Menezes, M., Robinson, M. F., Harkins, C., Sadikova, E., & Mazurek, M. O. (2021). Unmet health care needs and health care quality in youth with autism spectrum disorder with and without intellectual disability. Autism, 25(8):2199-2208.

McPartland J. & Volkmar F. R. (2012). Autism and related disorders. In Aminoff M. J., Boller F. & Swaab D. F., Handbook of Clinical Neurology. Yale Child Study Center.

National Institute for Health and Care Excellence (2021, June). Autism spectrum disorder in under 19s: support and management. https://www.nice.org.uk/guidance/cg170/resources/autism-spectrum-disorder-in-under-19s-support-and-management-pdf-35109745515205

Quill, K. A. & Brusnahan, L. L. S. (2017). DO-WATCH-LISTEN-SAY: Social and Communication Intervention for Au-tism Spectrum Disorders. 2nd Revised edition. Baltimore: Brookes Publishing Co.

Sampson W. G. & Sandra A. E. (2018). Comparative Study on Knowledge About Autism Spectrum Disorder Among Paediatric and Psychiatric Nurses in Public Hospitals in Kumasi, Ghana. Clinical Practice & Epidemiology in Mental Health, 14, 99-108. doi: 10.2174/1745017901814010099

Stefanik K. & Prekop Cs. (2015). Autizmus spektrum zavarok. In Balázs J. & Miklósi M. (szerk.), A gyermek- és ifjúkor pszichés zavarinak tankönyve. (pp. 61-67). Semmelweis Kiadó és Multimédia Stúdió.

Széplaki M. & Kapronczay S. (2008). Vény nélkül- Az autista emberek egészségügyi ellátásáról, szülőknek. (pp. 4-13). Budapest: Autisták Országos Szövetsége.

Széplaki M. (szerk.) (2014). Foglalkozzunk Vele! Fókuszban az autizmussal élő emberek egészségügyi ellátása. Segédanyag Autista paciensek ellátásához az egészségügyben- Alapfogalmak, módszerek, trükkök, biztonsági tudnivalók. Második, változatlan kiadás. Kecskemét: Autista Gyermekekért Egyesület.

Unigwe, S., Buckley, C., Crane, L., Kenny, L., Remington, A. & Pellicano, E. (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study. British Journal of General Practice, 67(659), e445–e452. doi:10.3399/bjgp17x690449

Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A. & Blumberg, S. J. (2015). Estimated prevalence of autism and other developmental disabilities following questionnaire changes in the 2014 National Health Interview Survey. National Center for Health Statistics, 87, 1-20. https://www.cdc.gov/nchs/data/nhsr/nhsr087.pdf

Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49. doi:10.1016/j.rasd.2015.11.008

Published
2024-06-12
How to Cite
TrixlerB., & PusztafalviH. (2024). Quantitative research involving health care professionals to investigate health care for individuals with autism. Multidisciplinary Health & Wellbeing, 2(2), 25-38. https://doi.org/10.58701/mej.11358
Section
Researches